🕊️ For More Than a Decade — Pain is Pain Has Been a Voice for the Unheard
For more than a decade, Pain is Pain has stood as a voice for the unheard — for the millions living with chronic, intractable pain who have been dismissed, denied, and left to suffer in silence.
This movement began with one woman’s voice — Cathy Kean — who turned her pain into purpose. Today, her story continues to inspire thousands across the chronic pain community.
Below is her story, shared in her own words.
💔 Cathy’s Story
My name is Cathy Kean, and for 25 years I’ve lived with intractable chronic pain — the kind that never stops, never lets up, and never gives me a moment of peace.
It began with a botched surgery that left me with arachnoiditis, Stiff Person Syndrome, anemia, fibromyalgia, migraines, cluster headaches, arthritis, neuropathy, back spine, and neck issues and insomnia.
For years, appropriate medications allowed me to live with 95% functionality. I worked, raised my four children, and spent time with my nine grandchildren.
But today, I am bedridden 98% of the time. Even walking across my home can leave me passed out from sheer pain. I am not alone.
Across America, millions of chronic pain patients are being abandoned. Doctors are disappearing, treatments denied, and patients left to suffer — or worse. Some turn to the streets out of desperation. Others lose their lives.
Since 2016, restrictive policies and fear-driven misinformation about opioids have led to the collapse of pain care in the United States. Many compassionate doctors have been arrested or driven out of practice for simply trying to relieve suffering. The result? Countless patients left untreated, invisible, and hopeless.
I maintain a list of over 400 individuals who have died because their pain was ignored. Their names are a reminder that pain, untreated, kills.
Pain management is not a privilege — it is a human right, recognized by the United Nations. To deny access to care is not protection — it is cruelty.
Your story is similar to mine. I can only pray for change and that somehow we go back to being compassionate human beings and treat each individuals pain with the appropriate individual amount needed for relief and function. We're being robbed of any semblance of a normal life. I lost my pain pump to infection and needed flap plastic surgery for the damage it caused and now back on oral meds no one will match what's needed in oral medication so I'm incapacitated with extreme pain. I shouldn't have to live like this. On top of everything else I still am turned down for any help from palliative care. Where do we turn, what do we do?
ReplyDeleteGoddard, I apologize I’m just seeing your comment! I’m sorry to hear how much pain you are in. If you are on Facebook please join our community. We support each other and help each other find solutions and help.
Delete@Goddad What state do you live in hun?
DeleteCathy Kean
Pennsylvania
DeleteSo you do have a pain management doctor right now however they won’t medicate you at the threshold they were when you had a pain pump in. Is that what I’m understanding?
DeleteI’m sorry it’s been taking me so long to respond to you. I got hacked on Facebook and I’m having a heck of a time getting emails getting I still haven’t been able to sign onto my personal page on Facebook and then I have a problem responding to people on the page Shaking my head. It seems like every time I start to get a step ahead. Something happens to my account mysteriously